We had Tommy's Battalion Christmas party and Santa was there and we had so much fun. Tommy served the guys diner and he got to eat with us as well. We enjoyed it very much. The kids really enjoyed it. This Christmas has been really great. I think the kids got everything they wanted and so did I, just seeing their faces were the best gift I could had every ask for. We stayed in our PJ's all day long, it was wonderful. The kids are off until the 4TH so they are very happy about it. This year we have moved from public school to home schooling and things seem to be going well for them. I know a lot of people think I'm crazy for doing it but Jonathan has a lot of things going on and he would had been missing so much school so with home school you do it the hours you need to as long as the lessons are turned in by midnight. Jonathan goes to appointments three to four times a week, so it's better to home school.
I'm sure everyone knows Jonathan has Aspergers and that in it's self is hard to deal with at times. But I would never trade him for anything in the world. He has started having seizures a few months ago and they have labeled him with Epilepsy. They did an MRI and he has a small tumor on his pituitary, they are keeping an eye on it and will repeat the MRI in January to see if it's grown any. They sent him to a Genetic doctor to see what was going because they found genetic disorder called Bilateral Periventricular Nodular Heteratopis.
They are trying to make a plan on what we will do next. He has a great group of about six doctor's who work very well together. He has been seeing an Endocrinologist and he is growing very well. 75% in weight and 11% on height. When we started a year ago he was under the charts for height and 10 % for weight. So he has come a long way. We would like for him to be closer in % but are happy things are going well. He does his own shot's six days a week, and does an amazing job at it. There is so much going on with him that I never stop. The home schooling we use has really worked with us because if he has a seizure he will sleep three hours after one and then kinda out of it most of the day. We have been praying hard for months and moving to Colorado Springs has really been good for us because the care we have gotten for Jonathan and Hannah has been amazing.
Hannah will be having surgery the 13TH, she is getting her tonsils taking out. She is scared but I told her she will get lots of treats for it. Tommy will be in CA. for NTC training. They were there in July but I guess if they will be deployed again next year you never have to much training. I will do my best to keep everyone updated on things that are going on with our family as they happen. We stay busy so I will always have something to post. Please keep our family in your prayers. We need all we can get. Hope everyone had a great year and we are looking forward to a better New Year.
