Seems things are starting to look up. Hannah has gone two days with no pain medicine and is eating without a problem.
We found out today that we have a meeting on Friday with the school to see what they can do for Bubby (Jonathan) he may start of with an hour a day and work up to a four hour school day. I enjoy home schooling but really want him to have some other children to play with. His ABA tutor is amazing, she gives him so much attention and he really seems to like her. She is working on him getting so upset with us not being with him at times. That's not often. I am on the wait list for respict care so that may be a way to go as well. He is such a great kid I just want the best for him and our family.We have been doing everything and are fighting to get him everything he needs to be able to function on his on without all the anxiety.Some have asked me what all is going on with him, I had posted this on December 25th I believe. I am going to really try to get more information posted for him. I'm excited and worried about the meeting Friday because I am stressed out and would like some help but it's my job as a mother to do what's right for him so if he's with me forever that's OK. :}
We have a Ct this week until they can get all the doctor's together on the same page for his next MRI, should not take that long. But just want to take a quick peek at his tumor. I have faith that things will be OK. His EFMP looks crazy on paper work, we may never leave Colorado. I have been doing research so Savannah would be a great place to go back to then I'll be two hours for help. But that wont happen until after Tommy deploys after the the new year. I may go live near them until he gets back anyways. A year is long time to do all the schooling and appointments alone. I'm worried about it and it will take awhile to happen. I'm a bit burnt out on things but I know it will get better. It has too..........
The kids and I are going to Texas for a few days while my great (sister friend) is home on her R&R) we are looking for the break where we have no appoints, school or anything be enjoyment. Life knows when you can't handle things and you are given a break if only for a few days.
We found out today that we have a meeting on Friday with the school to see what they can do for Bubby (Jonathan) he may start of with an hour a day and work up to a four hour school day. I enjoy home schooling but really want him to have some other children to play with. His ABA tutor is amazing, she gives him so much attention and he really seems to like her. She is working on him getting so upset with us not being with him at times. That's not often. I am on the wait list for respict care so that may be a way to go as well. He is such a great kid I just want the best for him and our family.We have been doing everything and are fighting to get him everything he needs to be able to function on his on without all the anxiety.Some have asked me what all is going on with him, I had posted this on December 25th I believe. I am going to really try to get more information posted for him. I'm excited and worried about the meeting Friday because I am stressed out and would like some help but it's my job as a mother to do what's right for him so if he's with me forever that's OK. :}
We have a Ct this week until they can get all the doctor's together on the same page for his next MRI, should not take that long. But just want to take a quick peek at his tumor. I have faith that things will be OK. His EFMP looks crazy on paper work, we may never leave Colorado. I have been doing research so Savannah would be a great place to go back to then I'll be two hours for help. But that wont happen until after Tommy deploys after the the new year. I may go live near them until he gets back anyways. A year is long time to do all the schooling and appointments alone. I'm worried about it and it will take awhile to happen. I'm a bit burnt out on things but I know it will get better. It has too..........
The kids and I are going to Texas for a few days while my great (sister friend) is home on her R&R) we are looking for the break where we have no appoints, school or anything be enjoyment. Life knows when you can't handle things and you are given a break if only for a few days.
