1-12-11

Well I'm still awake once again past bedtime. I had an upper GI done this morning really bothered my stomach and Hannah is in my bed and she is all over the plae. She has surgery in the morning and I think she is very worried. We have to get up at 5....It's midnight now. Long day ahead of us! I'm glad she is early so we can get it done and over with. Less time to stress. Well for her! It's great having Tommy here with us, he has helped so much with appointments this month. Didn't realize how much I really run around everyday! Well I will update on Hannah after her surgery tomorrow. Hope everyone is doing well.

First week of year down...............

Well our first week of the new year is down and gone. Big things have already started taking place for us. I had my surgery on Monday, things went well. Had a little set back with the medicine but feeling so much better. School started back up Wednesday and it took just a few hours but I think we have headed to the right direction with that. It's always hard after having a nice long break to jump back in with both feet. Bubby started his ABA Therapy which we have been fighting for for a year so we are so glad to have that. He was a bit worried about going but after day one they had him sold on it. :} Just another way of getting him around other kids and away from me if only for a few hours a week. He gets to go 12 hours a week. That's kinda nice to starting offwith. I'm really hoping this second half of the school year goes smoother then the first. With all Bubby's appointments I think we have made the right decision on home schooling him, well both children. He does the four days a week of ABA, then he sees a really wonderful doctor just for his Aspergers. Dr. Thede. She is a blessing to us. Her son is 31 and has Aspergers as well so she understands so much that Bubby is going through. She also sees Hannah. We thought that it would be nice to have Hannah talk with someone because he does have a lot going on and she feels she gets the short end of the stick at times. I would have to agree with her. Tricare does not pay for it but worth having someone that knows from many points where Hannah is coming from.. And it helps that she can say what she wants and no one will know but her and the doctor. I feel good knowing she is able to express herself. All together Bubby has seven doctors and Hannah has two.
Hannah has her pre-op Monday and surgery on Thursday. We are very lucky daddy got to stay home and will be able to go with us.Once again I've been married to Tommy 18 of his 22 years in and he ahs never asked to be kept back for anything.  The past year I've been so stressed and I think the kids feel that as well. It just makes for a happy end of day when we have daddy with  us. At this point there is not one day except for the 11TH that we have no appointments that we need to go to. Most of them are here in the Springs but Denver isn't too bad of a drive. Very pretty views along the way.
 On the 18Th Bubby's doctors will make the call as to if he has suegery or not. So still asking for prayers. Please! So it's perfect having Tommmy home in case we need to do this. And I also feel more relaxed and sleep a bit easier. But then again it's 1:00 am and everyone is asleep but me. lol It's hard to think about anything but has the tumor grown, will they take it out, what will it intell. So I am really trying to take it day by day and just see what tomorrow brings. It's hard not to get snappy, upset and all the wonderful things your head does to you when all you want is an answer.I am finding that I'm more forgetful then normal but if I have to leave little sticky notes all over the house I will. I learned for a friend here, about keeping a notebook that has everything in it. I have copies of copies in there, his MRI cd's from before. You name it I have it. But when I go to his appointments it's better then having to say I'll get a copy to you. I keep copies of labs, medicine and just about anything under the sun that has to deal with him, Hannah and my self in it. It is kinda big but really think I'd be lost without it. I can see what dates I have appointments so there is no over booking.
I will let everyone know what time Hannah's surgery with be on the 13TH when we find out Monday! Bubby has a few appointments next week as well. They are doing ultra sounds on his kidneys and bladder to make sure the medicine he is on is not effecting them. We just want (like any parent would) for the tumor to stay the same and no surgery needed and all the side effect from the medicines to stop. In a perfect world everything would be grand, so lets hope for my perfect world to come back and we can wake up from this dream and have no more tumor, epilesy, genetic disorder, aspergers and anything else that has made it into our world to be gone. Hey, a girl can dream right? No more nightly shot's, medicine, trips to ER in the middle of the night. Don't get me wrong I love Bubby forwho he is, but I want him healthy and happy. he is a wonderful boy a mothercould not ask for me. I was blessed twice over whe I had them. Hannah is really helping and trys hard to understand I have to keep telling myself she is 11. But she'll tell you in under twomonths she's be 12....lol! Well we will update soon. Hope everyone has a great weekend. And Please cll us sometime, we would really love to hear from our family and friends. Good Night!

NTC Update

Great news for us, Tommy does not have to go to NTC this go around. Super excited about this. January will keep us super busy, more so then normal. I'm healing from  my surgery nicely and feel blessed that Tommy is able to be home for the month to help me. Hannah has her surgery next week, she is not happy with this but I'm hoping it will stop all the strep she has had the past few years. And her daddy will be here to take her and spend time with her as well. Aunt Lee Ann will come spend the day with Jonathan which is a huge relief off us. Thanks Aunt Lee Ann. Jonathan has started his ABA Therapy so we are getting into the swing of our new year nicely. Four days a week is a lot but will also hopefully put us in the right direction we need to be in.
The 18TH is our big day as to if they will do surgery on him, so we are saying our prayers and hope nothing has change and we get to keep up with our life as we have been. They let Tommy stay home in case we do have to face surgery and it will just make things so muc better then having to have him come home with a Red cross message. We are asking that everyone keeps the prayers coming so we don't have to face such a large surgery. I'm just blessed wit all the support we are getting from our families and friends. Thank you all for everything. I will update as we find things out. Everyday is something new in our home but it wouldn't be our home without all the excitement! God Bless and thank you all.

Bushwhackers Pet Rat

Update on my surgery

Was up early yesterday to get to my surgery. Seems as if everything went great. I talked their ears off, guess when I get nervous I do that. :} Ok I also like to take. Went to sleep in OR talking think I woke up talking. I can't sleep. My pain is a pain more then I thought he said it would hurt more today but being work up at 4am with pain and my back bleeding is not what I wanted. Hannah spent night off Bubby and Tom are having sleep out in other room. Kinda glad because I've been all over the bed tonight, well last night. One and half hour of sleep wont work for me. Will see if the pills I just took will knock me out some.Glad school starts tomorrow.
Today we have no appointments thank God. Tomorrow we start full force. Tom is suppose to leave Friday for the month hoping he gets out of it. With Hannah's surgery on the 13th and maybe Bubby's on the 18th it's going to be a crazy month here in the Spies house. Well just wanted to touch base. Bubby wanted me to share pictures of the Rat we have been watching while all the guys were on leave as well. She is a cutie. She likes to bite. The cat wants her and the dog wants them both! lol! Take care will write soon.

Happy New Year 1-1-11

Just wanted to wish everyone a Happy New Year! We are so happy 2011 is here and we start a new journey with the new year. I hope everyone had a wonderful time bringing in the year. The kids and us watched the ball drop together with a toast! They made it to 1am, and Tommy until 2am. I myself am still wide awake as normal. My body just wont relax enough to go to sleep early. I'm sure sooner or later I'll just crash and sleep for weeks. If I could fit that in I would love to do so. It seems my only down time is late in the nights so I'm just doing what I need to do to make it. You close your eyes but that's when everything starts making you think. I do believe you can think to much at times. I think the mind gets over loaded. Well once again Happy New Year to all.......... 

Fun in the snow.........Last day of 2010!

I just wanted to post a few pictures of the kids out with the dog. They said the dog was stealing their snow :} They did not last long it was only 7 degrees so they came not quickly! Hope everyone has a great day and enjoy your  night. If you are going out Stay safe and Have someone who is not drinking drive! We are having a big pot of chili so if you want any come on over!