Hello everyone

OK I want to say it's Friday and I'm glad this week is over with. Who's with me? Tommy had a lot of working in the cold this week I felt really bad for him. But they are back to the office. We had a busy week. Always do but this one flew by. Tommy had an appointment for his wrist this week, they gave him a steroid shot and braced it. He goes back in a month and we hope the shot helps so there is no surgery needed.He said it was feeling better now. We'll see. Both wrist are messed up so after they do the one they will do the other. My wrist has started feeling better, the fracture sure takes awhile to fell any better. It's been over a week and still very swollen but at least the pain is a bit better. Hannah is back full swing of things this week. She amazes me. She is our wonderful girl. Bubby had a few melt downs this week but they seem to be getting better. Not sure if it's the ABA or Dr Thede therapy but if it works we will keep up with it. I hope this is a good sing of a good year. We have started off better so hope it stays that way. They made his Office Manager at ABA on Fridays, he just loves it. He has a badge and all. Pretty cute. They all have falling in love with him and his helper is the greatest. We lucked out. The kids and I are heading to Texas Monday for a few days. My friend is home for R&R so it's our turn to go see her. We met the last time we were station here in 94. We were also station together in Hawaii. The Kids call her Aunt Dee Dee, they are super excited. I think Tommy is to, he gets the house to him self for a week. lol! I have cxl appointments, therapy, and school for the week because I just want to worry about nothing and enjoy our time with friends. Hoping to see a few other friends there that we haven't seen in years. We are going to have a blast! Hope all are doing well. I will try to update while gone and will post pictures when we get back. I think Bubby, Hannie and I need this alot. Take care.

Another week one by

Another week has past us by, I really don't know where the time goes. I do try to keep up with this better but I can't make excuses as to why I don't do better. Some days there really isn't much to write about. Hannah has gotten all heeled and back to her old self. I think the no talking got to her because she is really giving us the double talking now...lol! Bubby had a good week. he was a bit stressed ths afternoon but I think every Sunday is like that because he worries about the up coming week of school. We have started writing out what he'll be doing the next day and that seems to be helping him a little. Hey if it works do it right? I'm not sleeping again, should be I took some pain medicine but woke up after an hour so thought I'd catch up with the blog and some emails I have to get out. I fracutured my wrist once again this week. I fall over nothing, as Bubby says that takes skills. I'll wear this little cast for four weeks and see the doctor about getting pins put in my wrist. I've broke it in the same spot so much that it's pretty weak. ABA therapy is relly going well for Bubby, he is the office manager, he thinks it's the collest place ever! They have him doing all kinds of things I'm so happy. Wish it was more hours durning the week but it's better then nothing. He does it four days a week plus play therapy with an amazing doctor, DR. Thede, her son has Aspergers as well so it's nice she knows what I feel and is right on it.
We have an appointment with the school Tuesday for him to get into a two hour days with social groups. Not sure what it's all about so I'll write about it. I hope it is a good thing. His CT came back good last week, no difference and they are just going to watch the tumor and go from there. I feel blessed. The doctor said some people walk around years with them and nothing ever comes of them. I hope that's the case here, we had a prayer cloth that I had him hold so I hope that helped us. I really think prayers work, so keep them coming.
It's going to be the high of 4 Tuesday, If the school was not right behind our house I would not leave for anything. Depends on how much snow we have they may cxl it. The kids and I are going to see my friend in Texas next week. We need a break and just walk away for a few days from all appointments and worries. Tom wont be able to go. He's guys are getting home from NTC so I'm sure he'll have plenty to keep him busy. If not he'll play xbox I'm sure :} That or read the news for hours on the computer, Either way he has done so muh this month with helping that I have to say he needs a break for a few days as well.
The kids birthdays are March 5th we are taking them to Kansas to see friends they just love. Great family wish they were here. Hannah would move back if we let her. Still thinking of what to get them  for their gifts we have a few things in mind but still thinking it over. Can't believe they will be 12 this year! We just had them........

Looking up

Seems things are starting to look up. Hannah has gone two days with no pain medicine and is eating without a problem.
We found out today that we have a meeting on Friday with the school to see what they can do for Bubby (Jonathan) he may start of with an hour a day and work up to a four hour school day. I enjoy home schooling but really want him to have some other children to play with. His ABA tutor is amazing, she gives him so much attention and he really seems to like her. She is working on him getting so upset with us not being with him at times. That's not often. I am on the wait list for respict care so that may be a way to go as well. He is such a great kid I just want the best for him and our family.We have been doing everything and are fighting to get him everything he needs to be able to function on his on without all the anxiety.Some have asked me what all is going on with him, I had posted this on December 25th I believe. I am going to really try to get more information posted for him. I'm excited and worried about the meeting Friday because I am stressed out and would like some help but it's my job as a mother to do what's right for him so if he's with me forever that's OK. :}
We have a Ct this week until they can get all the doctor's together on the same page for his next MRI, should not take that long. But just want to take a quick peek at his tumor. I have faith that things will be OK. His EFMP looks crazy on paper work, we may never leave Colorado. I have been doing research so Savannah would be a great place to go back to then I'll be two hours for help. But that wont happen until after Tommy deploys after the the new year. I may go live near them until he gets back anyways. A year is long time to do all the schooling and appointments alone. I'm worried about it and it will take awhile to happen. I'm a bit burnt out on things but I know it will get better. It has too..........
The kids and I are going to Texas for a few days while my great (sister friend) is home on her R&R) we are looking for the break where we have no appoints, school or anything be enjoyment. Life knows when you can't handle things and you are given a break if only for a few days.

Hannah

Just wanted to tell everyone that Hannah had a wonderful day today! I think she is back to her old self. Still can't talk loud...not that we mind that, lol! Thanks for all the calls and prayers! Hope everyone is having a great weekend. Ready for football play offs tomorrow. Enjoy.

More updates :}

Sorry I have not been keeping up this week. It's been a long week. Hannah has had a really hard time with her surgery. She is in a lot of pain which we knew she would be but it really hard to see her like this because she is so happy go lucky girl and she is in a lot of pain. She scared us last night she started bleeding a lot from her throat so we went to the ER and they said it was normal but when we called her ENT this morning her said it was not normal!  We went in to see him and he said if it happens again he'll have to take her back in the OR and fix it. More intensive treatment but if it has to be done then we will just deal with it. She has slept a lot this week. Between her and Bubby I stay very busy!
Now on to Bubby, We found out today that his doctor needs a new consult the other one is no longer good.....nice huh! I was on it as much as I could be with appointments today. Tomorrow I will got to his doctor's and have him put it in. I laugh when people say the military has such great things...my child could need surgery but I have to wait until Tricare (military insurence) allows us too.
Bubby is loving ABA Therapy, I enjoy him going as well gives him some time to be away from me and everyone knows how attached at the hip he is with Tommy and me. He is so sweet and cute how can you not love it, but you need a break at times. Homeschooling and all the appointments we don't get much alone time. But we love being parents so it's all great!
I will try to keep better information updates sorry I said I would do better so I will try.

Pictures of Hannah from suugery and gifts :}

Hannah update

Hannah's surgery went well. She is in a lot of pain but we knew that would happen. Very normal. She was very stressed when we got to the hospital. A few tears and off she went. We were home by 11:30. She got sick a few times last night but seems to be doing better now with holding her juice down. Adenoids were only 50% blocked So they went ahead and took them because if not she would end up back getting them done. Jonathan was stressed about Hannah, made himself sick over it. But once she got home he was better. He loves his sister. She got Flowers and lots of fun socks from Mommy, daddy and Bubby. Aunt Boo Boo sent her an adopted Tiger from the zoo here. Very cute stuff they send out. When she feels better we will go see her. Grandpa and Grandma Spies sent a really cool purse. And Grandma Hobson sent her flowers. So she was excited. I will post pictures of her flowers later and Tiger.
Jonathan's big day is Tuesday, I'm asking lots of prayers that surgery is not needed. My sister's best friend sent us a prayer cloth and I am so blessed to have so many people who care so much about the kids. I know it will make him better! I know it. Hope everyone has a great weekend. |