Another week one by

Another week has past us by, I really don't know where the time goes. I do try to keep up with this better but I can't make excuses as to why I don't do better. Some days there really isn't much to write about. Hannah has gotten all heeled and back to her old self. I think the no talking got to her because she is really giving us the double talking now...lol! Bubby had a good week. he was a bit stressed ths afternoon but I think every Sunday is like that because he worries about the up coming week of school. We have started writing out what he'll be doing the next day and that seems to be helping him a little. Hey if it works do it right? I'm not sleeping again, should be I took some pain medicine but woke up after an hour so thought I'd catch up with the blog and some emails I have to get out. I fracutured my wrist once again this week. I fall over nothing, as Bubby says that takes skills. I'll wear this little cast for four weeks and see the doctor about getting pins put in my wrist. I've broke it in the same spot so much that it's pretty weak. ABA therapy is relly going well for Bubby, he is the office manager, he thinks it's the collest place ever! They have him doing all kinds of things I'm so happy. Wish it was more hours durning the week but it's better then nothing. He does it four days a week plus play therapy with an amazing doctor, DR. Thede, her son has Aspergers as well so it's nice she knows what I feel and is right on it.
We have an appointment with the school Tuesday for him to get into a two hour days with social groups. Not sure what it's all about so I'll write about it. I hope it is a good thing. His CT came back good last week, no difference and they are just going to watch the tumor and go from there. I feel blessed. The doctor said some people walk around years with them and nothing ever comes of them. I hope that's the case here, we had a prayer cloth that I had him hold so I hope that helped us. I really think prayers work, so keep them coming.
It's going to be the high of 4 Tuesday, If the school was not right behind our house I would not leave for anything. Depends on how much snow we have they may cxl it. The kids and I are going to see my friend in Texas next week. We need a break and just walk away for a few days from all appointments and worries. Tom wont be able to go. He's guys are getting home from NTC so I'm sure he'll have plenty to keep him busy. If not he'll play xbox I'm sure :} That or read the news for hours on the computer, Either way he has done so muh this month with helping that I have to say he needs a break for a few days as well.
The kids birthdays are March 5th we are taking them to Kansas to see friends they just love. Great family wish they were here. Hannah would move back if we let her. Still thinking of what to get them  for their gifts we have a few things in mind but still thinking it over. Can't believe they will be 12 this year! We just had them........

Looking up

Seems things are starting to look up. Hannah has gone two days with no pain medicine and is eating without a problem.
We found out today that we have a meeting on Friday with the school to see what they can do for Bubby (Jonathan) he may start of with an hour a day and work up to a four hour school day. I enjoy home schooling but really want him to have some other children to play with. His ABA tutor is amazing, she gives him so much attention and he really seems to like her. She is working on him getting so upset with us not being with him at times. That's not often. I am on the wait list for respict care so that may be a way to go as well. He is such a great kid I just want the best for him and our family.We have been doing everything and are fighting to get him everything he needs to be able to function on his on without all the anxiety.Some have asked me what all is going on with him, I had posted this on December 25th I believe. I am going to really try to get more information posted for him. I'm excited and worried about the meeting Friday because I am stressed out and would like some help but it's my job as a mother to do what's right for him so if he's with me forever that's OK. :}
We have a Ct this week until they can get all the doctor's together on the same page for his next MRI, should not take that long. But just want to take a quick peek at his tumor. I have faith that things will be OK. His EFMP looks crazy on paper work, we may never leave Colorado. I have been doing research so Savannah would be a great place to go back to then I'll be two hours for help. But that wont happen until after Tommy deploys after the the new year. I may go live near them until he gets back anyways. A year is long time to do all the schooling and appointments alone. I'm worried about it and it will take awhile to happen. I'm a bit burnt out on things but I know it will get better. It has too..........
The kids and I are going to Texas for a few days while my great (sister friend) is home on her R&R) we are looking for the break where we have no appoints, school or anything be enjoyment. Life knows when you can't handle things and you are given a break if only for a few days.

Hannah

Just wanted to tell everyone that Hannah had a wonderful day today! I think she is back to her old self. Still can't talk loud...not that we mind that, lol! Thanks for all the calls and prayers! Hope everyone is having a great weekend. Ready for football play offs tomorrow. Enjoy.

More updates :}

Sorry I have not been keeping up this week. It's been a long week. Hannah has had a really hard time with her surgery. She is in a lot of pain which we knew she would be but it really hard to see her like this because she is so happy go lucky girl and she is in a lot of pain. She scared us last night she started bleeding a lot from her throat so we went to the ER and they said it was normal but when we called her ENT this morning her said it was not normal!  We went in to see him and he said if it happens again he'll have to take her back in the OR and fix it. More intensive treatment but if it has to be done then we will just deal with it. She has slept a lot this week. Between her and Bubby I stay very busy!
Now on to Bubby, We found out today that his doctor needs a new consult the other one is no longer good.....nice huh! I was on it as much as I could be with appointments today. Tomorrow I will got to his doctor's and have him put it in. I laugh when people say the military has such great things...my child could need surgery but I have to wait until Tricare (military insurence) allows us too.
Bubby is loving ABA Therapy, I enjoy him going as well gives him some time to be away from me and everyone knows how attached at the hip he is with Tommy and me. He is so sweet and cute how can you not love it, but you need a break at times. Homeschooling and all the appointments we don't get much alone time. But we love being parents so it's all great!
I will try to keep better information updates sorry I said I would do better so I will try.

Pictures of Hannah from suugery and gifts :}

Hannah update

Hannah's surgery went well. She is in a lot of pain but we knew that would happen. Very normal. She was very stressed when we got to the hospital. A few tears and off she went. We were home by 11:30. She got sick a few times last night but seems to be doing better now with holding her juice down. Adenoids were only 50% blocked So they went ahead and took them because if not she would end up back getting them done. Jonathan was stressed about Hannah, made himself sick over it. But once she got home he was better. He loves his sister. She got Flowers and lots of fun socks from Mommy, daddy and Bubby. Aunt Boo Boo sent her an adopted Tiger from the zoo here. Very cute stuff they send out. When she feels better we will go see her. Grandpa and Grandma Spies sent a really cool purse. And Grandma Hobson sent her flowers. So she was excited. I will post pictures of her flowers later and Tiger.
Jonathan's big day is Tuesday, I'm asking lots of prayers that surgery is not needed. My sister's best friend sent us a prayer cloth and I am so blessed to have so many people who care so much about the kids. I know it will make him better! I know it. Hope everyone has a great weekend. |

1-12-11

Well I'm still awake once again past bedtime. I had an upper GI done this morning really bothered my stomach and Hannah is in my bed and she is all over the plae. She has surgery in the morning and I think she is very worried. We have to get up at 5....It's midnight now. Long day ahead of us! I'm glad she is early so we can get it done and over with. Less time to stress. Well for her! It's great having Tommy here with us, he has helped so much with appointments this month. Didn't realize how much I really run around everyday! Well I will update on Hannah after her surgery tomorrow. Hope everyone is doing well.

First week of year down...............

Well our first week of the new year is down and gone. Big things have already started taking place for us. I had my surgery on Monday, things went well. Had a little set back with the medicine but feeling so much better. School started back up Wednesday and it took just a few hours but I think we have headed to the right direction with that. It's always hard after having a nice long break to jump back in with both feet. Bubby started his ABA Therapy which we have been fighting for for a year so we are so glad to have that. He was a bit worried about going but after day one they had him sold on it. :} Just another way of getting him around other kids and away from me if only for a few hours a week. He gets to go 12 hours a week. That's kinda nice to starting offwith. I'm really hoping this second half of the school year goes smoother then the first. With all Bubby's appointments I think we have made the right decision on home schooling him, well both children. He does the four days a week of ABA, then he sees a really wonderful doctor just for his Aspergers. Dr. Thede. She is a blessing to us. Her son is 31 and has Aspergers as well so she understands so much that Bubby is going through. She also sees Hannah. We thought that it would be nice to have Hannah talk with someone because he does have a lot going on and she feels she gets the short end of the stick at times. I would have to agree with her. Tricare does not pay for it but worth having someone that knows from many points where Hannah is coming from.. And it helps that she can say what she wants and no one will know but her and the doctor. I feel good knowing she is able to express herself. All together Bubby has seven doctors and Hannah has two.
Hannah has her pre-op Monday and surgery on Thursday. We are very lucky daddy got to stay home and will be able to go with us.Once again I've been married to Tommy 18 of his 22 years in and he ahs never asked to be kept back for anything.  The past year I've been so stressed and I think the kids feel that as well. It just makes for a happy end of day when we have daddy with  us. At this point there is not one day except for the 11TH that we have no appointments that we need to go to. Most of them are here in the Springs but Denver isn't too bad of a drive. Very pretty views along the way.
 On the 18Th Bubby's doctors will make the call as to if he has suegery or not. So still asking for prayers. Please! So it's perfect having Tommmy home in case we need to do this. And I also feel more relaxed and sleep a bit easier. But then again it's 1:00 am and everyone is asleep but me. lol It's hard to think about anything but has the tumor grown, will they take it out, what will it intell. So I am really trying to take it day by day and just see what tomorrow brings. It's hard not to get snappy, upset and all the wonderful things your head does to you when all you want is an answer.I am finding that I'm more forgetful then normal but if I have to leave little sticky notes all over the house I will. I learned for a friend here, about keeping a notebook that has everything in it. I have copies of copies in there, his MRI cd's from before. You name it I have it. But when I go to his appointments it's better then having to say I'll get a copy to you. I keep copies of labs, medicine and just about anything under the sun that has to deal with him, Hannah and my self in it. It is kinda big but really think I'd be lost without it. I can see what dates I have appointments so there is no over booking.
I will let everyone know what time Hannah's surgery with be on the 13TH when we find out Monday! Bubby has a few appointments next week as well. They are doing ultra sounds on his kidneys and bladder to make sure the medicine he is on is not effecting them. We just want (like any parent would) for the tumor to stay the same and no surgery needed and all the side effect from the medicines to stop. In a perfect world everything would be grand, so lets hope for my perfect world to come back and we can wake up from this dream and have no more tumor, epilesy, genetic disorder, aspergers and anything else that has made it into our world to be gone. Hey, a girl can dream right? No more nightly shot's, medicine, trips to ER in the middle of the night. Don't get me wrong I love Bubby forwho he is, but I want him healthy and happy. he is a wonderful boy a mothercould not ask for me. I was blessed twice over whe I had them. Hannah is really helping and trys hard to understand I have to keep telling myself she is 11. But she'll tell you in under twomonths she's be 12....lol! Well we will update soon. Hope everyone has a great weekend. And Please cll us sometime, we would really love to hear from our family and friends. Good Night!

NTC Update

Great news for us, Tommy does not have to go to NTC this go around. Super excited about this. January will keep us super busy, more so then normal. I'm healing from  my surgery nicely and feel blessed that Tommy is able to be home for the month to help me. Hannah has her surgery next week, she is not happy with this but I'm hoping it will stop all the strep she has had the past few years. And her daddy will be here to take her and spend time with her as well. Aunt Lee Ann will come spend the day with Jonathan which is a huge relief off us. Thanks Aunt Lee Ann. Jonathan has started his ABA Therapy so we are getting into the swing of our new year nicely. Four days a week is a lot but will also hopefully put us in the right direction we need to be in.
The 18TH is our big day as to if they will do surgery on him, so we are saying our prayers and hope nothing has change and we get to keep up with our life as we have been. They let Tommy stay home in case we do have to face surgery and it will just make things so muc better then having to have him come home with a Red cross message. We are asking that everyone keeps the prayers coming so we don't have to face such a large surgery. I'm just blessed wit all the support we are getting from our families and friends. Thank you all for everything. I will update as we find things out. Everyday is something new in our home but it wouldn't be our home without all the excitement! God Bless and thank you all.

Bushwhackers Pet Rat

Update on my surgery

Was up early yesterday to get to my surgery. Seems as if everything went great. I talked their ears off, guess when I get nervous I do that. :} Ok I also like to take. Went to sleep in OR talking think I woke up talking. I can't sleep. My pain is a pain more then I thought he said it would hurt more today but being work up at 4am with pain and my back bleeding is not what I wanted. Hannah spent night off Bubby and Tom are having sleep out in other room. Kinda glad because I've been all over the bed tonight, well last night. One and half hour of sleep wont work for me. Will see if the pills I just took will knock me out some.Glad school starts tomorrow.
Today we have no appointments thank God. Tomorrow we start full force. Tom is suppose to leave Friday for the month hoping he gets out of it. With Hannah's surgery on the 13th and maybe Bubby's on the 18th it's going to be a crazy month here in the Spies house. Well just wanted to touch base. Bubby wanted me to share pictures of the Rat we have been watching while all the guys were on leave as well. She is a cutie. She likes to bite. The cat wants her and the dog wants them both! lol! Take care will write soon.

Happy New Year 1-1-11

Just wanted to wish everyone a Happy New Year! We are so happy 2011 is here and we start a new journey with the new year. I hope everyone had a wonderful time bringing in the year. The kids and us watched the ball drop together with a toast! They made it to 1am, and Tommy until 2am. I myself am still wide awake as normal. My body just wont relax enough to go to sleep early. I'm sure sooner or later I'll just crash and sleep for weeks. If I could fit that in I would love to do so. It seems my only down time is late in the nights so I'm just doing what I need to do to make it. You close your eyes but that's when everything starts making you think. I do believe you can think to much at times. I think the mind gets over loaded. Well once again Happy New Year to all..........